Wednesday, October 07, 2009

31 for 21

I just wanted to explain that little button over to the right. 31 for 21 is an effort (that I've already failed at) for bloggers who love someone with Down syndrome to write a blog post every day during the month of October. The post doesn't have to be about Down syndrome, just about life.

And life these days with Nikki is good. I had to take her into the pediatrician last night (I thought she might have strep or pneumonia again) and we saw one of the doctors in the practice whom we haven't seen in years. I joked that I thought the last time she saw him she was still a newborn with a feeding tube.

It brought back some memories of those days. It doesn't seem possible that it was really six years ago. She was so tiny and it was so scary to be her mother. At 6 weeks Nikki has a NG feeding tube inserted because she was declared failure to thrive. Four weeks later she had open-heart surgery to repair her complete AV canal defect.

She was one very sick little baby -- but the changes after her surgery were almost immediate. She became rosy-cheeked rather than grey, active and feisty instead of lethergic - it was amazing.

Today, she gets sick a little bit quicker than other children and it lingers a bit longer but she has more in common with her peers than she has that differentiates her from them. Nikki can read on a first grade level, she actually enjoys doing her homework and schoolwork, she's trying to teacher James his colors, shapes and ABCs.

So who is the person you love with Down syndrome?
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